sharon1
Active Member
I have Hidradenitis Suppurativa, and I can completely identify with what you are going through. (hugs)
It is an incidious acne/boil-like disease that attacks the most indiscrete areas of one's body. On my butt, in my groin, under my boobs....you name an embarrassing area to get sores....and I've had it there.
It often goes unreported because so many (including myself) are too embarrassed to even go to the Dr. to have it checked, but even when people do drum up the courage to go, it is very often misdiagnosed...as mine was as well....for over 15 years. My regular Dr. just kept saying that "some people are prone to boils and it looks like you're one of them".
It is, aside from cancer, one of the most horrific skin diseases you can come across. And there is very little to do for it, and it's incurable.
I take 50 mg's of Zinc combined with 500 mg's of tumeric, and that helps. However, the combo makes me nausous(sp)......and that is why I started smoking pot and got my card. It immediately settles my stomach.
Oh, and I want to encourage you too, to not give up with relationships.
I totally feel ugly and unsexy...all.the.time.
But my husband swears he doesn't care about it and that it doesn't turn yhim off.
All I can do is believe him. Otherwise, I'd drive myself crazy always thinking about it.
And our sex life is better than it ever has been, even after 22 years (yesterday was our anniversary)
So please be encouraged. I know how you feel.
PM me if you wanna talk....I'll shoot you my email addy if you want.
It is an incidious acne/boil-like disease that attacks the most indiscrete areas of one's body. On my butt, in my groin, under my boobs....you name an embarrassing area to get sores....and I've had it there.
It often goes unreported because so many (including myself) are too embarrassed to even go to the Dr. to have it checked, but even when people do drum up the courage to go, it is very often misdiagnosed...as mine was as well....for over 15 years. My regular Dr. just kept saying that "some people are prone to boils and it looks like you're one of them".
It is, aside from cancer, one of the most horrific skin diseases you can come across. And there is very little to do for it, and it's incurable.
I take 50 mg's of Zinc combined with 500 mg's of tumeric, and that helps. However, the combo makes me nausous(sp)......and that is why I started smoking pot and got my card. It immediately settles my stomach.
Oh, and I want to encourage you too, to not give up with relationships.
I totally feel ugly and unsexy...all.the.time.
But my husband swears he doesn't care about it and that it doesn't turn yhim off.
All I can do is believe him. Otherwise, I'd drive myself crazy always thinking about it.
And our sex life is better than it ever has been, even after 22 years (yesterday was our anniversary)
So please be encouraged. I know how you feel.
PM me if you wanna talk....I'll shoot you my email addy if you want.